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my life with the desease


by: Taylor E. on Mon, May 19 2008

okay…my name is Taylor Elizondo and i am 14 years old.
i was diagnosed with mixed connective tissue disorder 6 months ago.
Today is may 16th two thousand and eight.
when we arrived at the Dallas airport me went straight to Scottish Right for children.
they did several treatments,blood work, and then we got the bad news we were hoping not to hear.
well you see, i have a really rare case of raynoids syndrome and my hands turn white when i get cold(even when it is hot outside) and when they start to get warm they turn a really ugly purple…almost like i am cutting off my ciculation. they tay like that for a couple of minutes, and then they turn real red and stay like that to show i am warm. and well today the doctor had told me that i have lupus….and i am really scared cuz i dont kno much about it and so now i am stuck wih 8 pills a day and a shot…
but one of the pills i take is used to lower blood pressure and mine is normal…so i think i have to spend most of my summer in the hospital….
ADVISE PLEASE?!?!?!?!?!?!?!?!

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May 2008

  • my life with the desease - by Taylor E. - (Mon, May 19 2008)
    okay…my name is Taylor Elizondo and i am 14 years old. i was diagnosed with mixed connective tissue disorder 6 months ago. [more..]
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